Day 3 of 3B.... May 1, 2013

It is currently 11:10 am on this Wednesday morning.  Last night they did Labs and they came back with his creatine at 1.7.  We thought wow this is so good, and began to prepare for what we thought would be dose #3 in the morning.  Labs were then taken again this morning at 4:00 am, and wow his creatine level had gone up to a 2.2 not good at all!  No dose and more waiting.  His blood pressure has been a problem this go around as well.  Keeps going down.  Utlra sound was taken of his bladder to make sure that was good and it was.

9:00 am more labs, and still no change in his creatine levels 2.2 and holding too high to dose.  It has to be below a 2 and Ron's is well above it!   They also don't like to dose if its been longer than 24 hours, Ron's last dose was yesterday at 2:10pm so, they are not saying he's done but he's getting close!  More labs will be drawn this afternoon before 2 and then the doctor will decide depending on his counts if he will dose again or go home.

We keep reminding ourselves it's not about the number of doses he gets its about the effect that he gets.   And Ron never lets us down.  It has been truly a miracle that he has been able to receive this treatment! And that it is working for him!

I wanted to thank all of the people who so kindly read this blog!  I try my best to keep it as up to date as possible, and to make it some what informative, and interesting as I can.  And it's also so nice that I don't have to explain everything that is going on over again.  I will give one disclaimer, and that is that I know I am terrible at spelling, and punctuation, so please forgive me for that.  I will say this blog has been great for us to keep our own record of all the goings on throughout this journey of Rons! And as I have said before he continues to amaze me!

Lindsey says it's boring without pictures so heres the most fun latest picture we have gotten and its not of Ron!  This is Maggie our youngest granddaughter showing pop how much she loves him!

FIGHT FIGHT FIGHT