October 8th 2013..... One year ago this very week!!!!

So here we are.... One year ago this very week we were told our lives would never be the same!! I have to say, it was a devastating day! Not one that I don't think anyone would be ready for.  We had many tears! Many worries and many prayers! We didn't really know where to begin or what to do.  So we took a deep breath, got it together, and said, "Ok if this is the direction the Lord wants us to go then we have to figure out what he wants us to do and what he wants us to learn from this trial."  And we have been trying to do that ever since.  

We are currently at the Huntsman Center for the day.  It's Ron's "LONG" day as we have had blood work, met with his oncologist, and we are now in the infusion room for his 4 hour infusion of Panidronate, which is to help his bones fight the cancer from coming back into them! This is the one he does once a month for, FOR EVER!!! (that makes me think of the sandlot if you haven't seen that show you need to!!)

Results from the labs all look good.  In speaking with his doc today I was told something that hit me, that I'm sure he has said before but, I guess I was listening better today who knows, but he said, "the drug that Ron is on right now called INLYTA its generic name is AXITINIB (AX-ih-TIH-nib), is NOT and I repeat NOT a chemo therapy which is what I have been calling it as well as the other one he was on before.  There is no chemo for kidney cancer.  I don't know why I thought that was what he was on.  He said no it's a biological therapy (target therapy) and they each have different "medians" or average length of span that they will work on a patient.  The one that Ron is on now AXITINIB only has a 6 month median, which I did not like at all.  But he reminded me that this is only an average and Ron has had a lot of other good things working on his behalf and hopefully it will work for a longer period of time.

But then he gave us more hope.... There is a new drug that is out there that Ron would qualify for if he can go for 3 months with out any brain tumors!!! He had his last MRI in September and his next one is scheduled for November 5th.  If when he has that done there is no new tumors he will qualify for this new drug that has had great results!!!!!! So what are we praying for?  No NEW TUMORS!!! His doc was very excited about this possibility as are we!!

So for now he will continue on the AXITINIB, which seems to be much better tolerated than the sutten was, and continue to pray for the guidance and blessings as we continue on this journey!

We had a great weekend with our girls this past weekend always tons of fun!!!

Emma and Grace frosting and eating cookies! 

Maggie has discovered her tongue! Just like Logan use to!!!

Snuggling with Maggie is the best!! 

Thats where we stand as of today.  More waiting, hoping, praying, and counting on the Lords blessings to come our way.  And realizing that we truly are in the Lords hands, and that as Ron always says, "there is always HOPE!"

"Even if you cannot always see that silver lining on your clouds, God can.  For He is the very source of the light you seek."  --Jeffery R. Holland

And Pres. Monson said, "The future is as bright as your faith."  And faith is something that we both have a lot of!!!

Thank you so much to you all for the many kind words, love and prayers that you have shown to us both! It truly means more than we could ever express!!! Please don't stop we will be praying hard that his brain remains tumor free for this next scan, so that he will qualify for the new drug! Until then lets have some fun enjoying this wonderful time of year!! Bring on the Christmas Music!!!!

FIGHT FIGHT FIGHT